Being properly unwell is life changing. It seems obvious, but it’s not. I spent at least 12 months post—diagnosis in denial, assuming the whole thing was happening to someone else. As a result, I failed to look after myself properly; and by this I mean I tried to work, live, love and generally operate as … Continue reading The Perfect Storm

I was diagnosed with Lupus 327 days ago. 326 days ago was the last time I fell asleep without worrying about death on my doorstep. 326 days ago was the last time I kissed my son goodbye and didn’t feel guilty. 326 days ago I didn’t have to hide my face from the sun. 327 … Continue reading 327 Days Ago