Those are the hands that seemed so tiny at first but continued to grow stronger each day as he learned to tie his shoes, zip his jacket, color in the lines, swing a bat, and throw a ball. Those are the hands that constantly tugged on my pant leg, tapped me on the back because … Continue reading Those Hands

I know time passes slowly when you are waiting for that procedure to be over. When you are waiting for even a glimpse of good news. When the results haven’t come back yet and you are holding your breath for just one good thing. The days are long. The nurses are in and out, the … Continue reading You’re Not Alone

Being properly unwell is life changing. It seems obvious, but it’s not. I spent at least 12 months post—diagnosis in denial, assuming the whole thing was happening to someone else. As a result, I failed to look after myself properly; and by this I mean I tried to work, live, love and generally operate as … Continue reading The Perfect Storm

I was diagnosed with Lupus 327 days ago. 326 days ago was the last time I fell asleep without worrying about death on my doorstep. 326 days ago was the last time I kissed my son goodbye and didn’t feel guilty. 326 days ago I didn’t have to hide my face from the sun. 327 … Continue reading 327 Days Ago